Integrating Participant Voice in Study Design through PPIE |
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Coordinator 1 | Ms Meghan Rainsberry (UCL Centre for Longitudinal Studies) |
Coordinator 2 | Ms Alyce Raybould (UCL Centre for Longitudinal Studies) |
In recent years, Participant and Public Involvement and Engagement (PPIE) has become an increasingly crucial element in ensuring that research studies are not only relevant and impactful but also inclusive and ethically grounded. By actively incorporating the perspectives of participants and the public, survey practitioners can address real-world needs and concerns, thereby enhancing the quality of their research and applicability of their findings. As new forms of data collection and linkage evolve, it is important to gather participant views on the acceptability and feasibility of these new methods. Moreover, research funders and ethics boards are increasingly viewing PPIE as a fundamental component of research projects. A variety of different approaches can be used including participant panels, focused qualitative projects and public dialogue discussions.
In this session we will explore and showcase methods for embedding participant voices throughout the research process, from initial design to analysis and impact This may include PPIE work on engagement, accessibility and inclusivity in surveys, including recruitment of ‘less often heard’ groups, work on public acceptability and trust as well as on specific design choices such as questionnaire content, mode and incentives.
We are seeking presentations that highlight successful applications of PPIE, including:
• Case Studies: Examples where participant engagement has had a significant impact on study design and outcomes.
• Participatory Techniques: Approaches such as co-design workshops, advisory panels, feedback surveys and other mechanisms that facilitate meaningful involvement of participants.
• Challenges and Solutions: Strategies for navigating common challenges like managing expectations, ensuring diverse representation of and feedback to participants.